Protecting Data Privacy in Health Services Research
by
Committee on the Role of Institutional Review Boards in Health Services Research Data Privacy Protection - Division of Health Care Services - Institute of Medicine - National Academy of Sciences
The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.
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Complete description
The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.
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General info
Publisher & Imprint:
National Academies Press
City:
Washington
Pages:
208
More info:
height 229 mm
width 152 mm
weight 340 gr
thickness 19 mm
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Age recommended:
Professional and scholarly
Subject Indexing & Classification
Dewey:(DC21) 174.2
Library of Congress Subject: R864.I555 Medical records - Access control.
Record updated at:
01 March, 2013
time:
10:50
Summary
Protecting Data Privacy in Health Services Research
Executive Summary; Introduction; Privacy and Research; Health Services Research; Benefits of HSR; Risks of Harm from HSR; Background and Policy Context; Project and Scope; Outline of Report; Human Subjects Protection and Health Services Research in Federal Regulations; IRBs and Human Subjects Protection; Previous Studies of IRBs; Human Subjects Protection in HSR; Principles and Practices; Best Practices for Irb Review of Health Services Research Subject to Federal Regulations; Best Practices for Irb or Other Review Board Oversight of Health Services Research not Necessarily Subject to Federal Regulations; Recommendations for Next Steps; References; Acronyms and Abbreviations; Appendixes; A Study Activities; B Institutional Review Boards and Health Services Research Data Privacy; A Workshop summary; Executive Summary; Introduction; Workshop Summary; References; Addendum A - Workshop Speakers; Addendum B - Workshop Participants; C Protecting the Health Services Research Data Minors Ross A. Thompson; D Confidentiality of Health Information: International Comparative Approaches; Bartha Maria Knoppers; E Biographical Sketches
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